Biobanks, governance, and informed consent and individual control [Elektronisk resurs] : a view from the United States / Ellen Wright Clayton.

• Contents: The structure and governance of biobanks -- Where data and biospecimens come from -- Downstream users of biobanks -- How much individual control does one have -- The impact of return of individual research results.

Ämnesord

Biobanks.  (LCSH)

Informed consent (Medical law).  (LCSH)

Preservation of organs, tissues, etc.  -- Law and legislation -- United States. (LCSH)

Preservation of organs, tissues, etc.  -- Moral and ethical aspects -- United States. (LCSH)

Tissue banks  -- Government policy -- United States. (LCSH)

Bioethical Issues.  (MeSH)

Biological Specimen Banks.  (MeSH)

Computer Security.  (MeSH)

Confidentiality.  (MeSH)

Government Regulation.  (MeSH)

Informed Consent.  (MeSH)

Tissue Banks  -- economics. (MeSH)

Tissue Banks  -- ethics. (MeSH)

Tissue Banks  -- legislation & jurisprudence. (MeSH)

Tissue Banks  -- organization & administration. (MeSH)

United States.  (MeSH)