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Errors, Omissions, and Offenses in the Health Record of Mental Health Care Patients [Elektronisk resurs] Results from a Nationwide Survey in Sweden

Bärkås, Annika (författare)
Kharko, Anna (författare)
Blease, Charlotte (författare)
Cajander, Åsa (författare)
Johansen Fagerlund, Asbjorn (författare)
Huvila, Isto (författare)
Johansen, Monika Alise (författare)
Kane, Bridget (författare)
Kujala, Sari (författare)
Moll, Jonas (författare)
Rexhepi, Hanife, 1984- (författare)
Scandurra, Isabella (författare)
Wang, Bo (författare)
Hägglund, Maria (författare)
Informationssystem, Information Systems (medarbetare)
Högskolan i Skövde Institutionen för informationsteknologi (utgivare)
Högskolan i Skövde Forskningsmiljön Informationsteknologi (utgivare)
Publicerad: JMIR Publications, 2023
Engelska.
Ingår i: Journal of Medical Internet Research. ; 25
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  • BACKGROUND: Previous research reports that patients with mental health conditions experience benefits, for example, increased empowerment and validation, from reading their patient-accessible electronic health records (PAEHRs). In mental health care (MHC), PAEHRs remain controversial, as health care professionals are concerned that patients may feel worried or offended by the content of the notes. Moreover, existing research has focused on specific mental health diagnoses, excluding the larger PAEHR userbase with experience in MHC. OBJECTIVE: The objective of this study is to establish if and how the experiences of patients with and those without MHC differ in using their PAEHRs by (1) comparing patient characteristics and differences in using the national patient portal between the 2 groups and (2) establishing group differences in the prevalence of negative experiences, for example, rates of errors, omissions, and offenses between the 2 groups. METHODS: Our analysis was performed on data from an online patient survey distributed through the Swedish national patient portal as part of our international research project, NORDeHEALTH. The respondents were patient users of the national patient portal 1177, aged 15 years or older, and categorized either as those with MHC experience or with any other health care experience (nonmental health care [non-MHC]). Patient characteristics such as gender, age, education, employment, and health status were gathered. Portal use characteristics included frequency of access, encouragement to read the record, and instances of positive and negative experiences. Negative experiences were further explored through rates of error, omission, and offense. The data were summarized through descriptive statistics. Group differences were analyzed through Pearson chi-square. RESULTS: Of the total sample (N=12,334), MHC respondents (n=3131) experienced errors (1586/3131, 50.65%, and non-MHC 3311/9203, 35.98%), omissions (1089/3131, 34.78%, and non-MHC 2427/9203, 26.37%) and offenses (1183/3131, 37.78%, and non-MHC 1616/9203, 17.56%) in the electronic health record at a higher rate than non-MHC respondents (n=9203). Respondents reported that the identified error (MHC 795/3131, 50.13%, and non-MHC 1366/9203, 41.26%) and omission (MHC 622/3131, 57.12%, and non-MHC 1329/9203, 54.76%) were "very important," but most did nothing to correct them (MHC 792/3131, 41.29%, and non-MHC 1838/9203, 42.17%). Most of the respondents identified as women in both groups. CONCLUSIONS: About 1 in 2 MHC patients identified an error in the record, and about 1 in 3 identified an omission, both at a much higher rate than in the non-MHC group. Patients with MHC also felt offended by the content of the notes more commonly (1 in 3 vs 1 in 6). These findings validate some of the worries expressed by health care professionals about providing patients with MHC with PAEHRs and highlight challenges with the documentation quality in the records. 

Ämnesord

Natural Sciences  (hsv)
Computer and Information Sciences  (hsv)
Computer Sciences  (hsv)
Naturvetenskap  (hsv)
Data- och informationsvetenskap  (hsv)
Datavetenskap (datalogi)  (hsv)
Natural Sciences  (hsv)
Computer and Information Sciences  (hsv)
Information Systems  (hsv)
Naturvetenskap  (hsv)
Data- och informationsvetenskap  (hsv)
Systemvetenskap, informationssystem och informatik  (hsv)
Social Sciences  (hsv)
Media and Communications  (hsv)
Information Systems, Social aspects  (hsv)
Samhällsvetenskap  (hsv)
Medie- och kommunikationsvetenskap  (hsv)
Systemvetenskap, informationssystem och informatik med samhällsvetenskaplig inriktning  (hsv)
Medical and Health Sciences  (hsv)
Health Sciences  (hsv)
Health Care Service and Management, Health Policy and Services and Health Economy  (hsv)
Medicin och hälsovetenskap  (hsv)
Hälsovetenskaper  (hsv)
Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi  (hsv)
Information Systems  (his)
Informationssystem (IS)  (his)

Genre

government publication  (marcgt)

Indexterm och SAB-rubrik

EHR
electronic health records
mental health
mental health care
national survey
online records access
open notes
ORA
PAEHR
patient-accessible electronic health record
patients
user experiences
adolescent
article
documentation
education
electronic health record
employment
encouragement
female
gender
health status
health survey
human
major clinical study
male
prevalence
Sweden
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